Monday, December 04, 2006

Article

The first week he rode the bus to school was tough for his mother.But for Nickolas Sills, 6, it was a victory.


Nick suffered a massive brain hemorrhage at birth, resulting in severe brain damage and cerebral palsy. Though he can see objects up to 5 feet away with his glasses, he is legally blind. He also has an aggression disorder, some characteristics of autism, and seizures. To ride the bus to H.L. Johnson Elementary School, Nick spent three years at Potentials Charter School, a Riviera Beach school for children ages 3 to 10 who are unable to walk or talk.Now he can do both."They weren't expecting him to live past 1. ... but he's still here. He's always proving everybody wrong," said his mother, Amy Burch Reynolds, 27.Nick is now a happy, social little boy who shares a cozy home near Royal Palm Beach with his mother, stepfather, Jonathan Reynolds, brother, Jason Kristian, 3, stepbrother Ender Reynolds, 5, a dog and five cats.On a recent afternoon, Nick was glued to the TV, watching one of his favorite DVDs, The Muppet Show. He looked up only to say "Hello!" to a visitor. Meanwhile, his brothers dressed in superhero costumes and ran through the living room. Reynolds, nine weeks pregnant, rests on the sofa in pink mouse slippers while Jonathan tends to the kids.But when Nick was born, Reynolds was alone.She sought specialists, therapists and the Easter Seals Child Development Center in West Palm Beach. When Nick got too old for his program at Easter Seals, Reynolds stumbled upon Potentials.The Arc of Palm Beach County, which provides services for people with developmental and mental disabilities, opened Potentials in 1998. The school now serves 30 students in Riviera Beach and 15 at a second school in Boca Raton.Nick had a vocabulary of 8 to 10 words and was in a wheelchair when he started at Potentials in 2003. Some children do not walk because their muscles are tightly contracted, making movement difficult. That wasn't Nick's issue, said Mary Pengelley, his physical therapist at Potentials."He did not choose to be on his feet," Pengelley said. "It was often a behavioral thing."His classroom had a teacher, several aides, a physical therapist, a speech therapist and an occupational therapist every day. Nick's therapy was folded into the curriculum, and the silent little boy became a chatterbox, Pengelley said."We set high expectations. We look for children to be as independent as possible," Pengelley said. "The day they start school here, they are no longer diapered. They have to stand, have to balance, wash their hands, feed themselves."The staff also recognized that progress comes slowly."We're not asking them to go 100 feet, but a few steps," she said. "Every day it's more and more and more."Because it is a public charter school, Potentials receives state funds, but grants and fundraising help pay for the therapy. The school also helped Reynolds buy a wheelchair and a walker.Reynolds saw the dedication of the staff personally because she volunteered at least twice a month, leading art projects for Nick's class."Whatever they did at school that I could do, I did at home," Reynolds said.Nick's vocabulary has increased to 27 words, and he gets around with a walker and leg braces that help straighten his feet and stabilize his ankles.This spring, Potentials instructors told Reynolds some good news: Nick was ready to graduate.But she was "scared out of her mind" that Nick would regress without the staff's attention, she said. Eventually, she found a good program at H.L. Johnson. Nick was placed in a classroom with children of different ages but similar abilities."He was a little unhappy at first, but the awesome thing about the staff at The Arc was they came to his new school a couple days a week. They helped him big-time with the transition," Reynolds said.He still receives physical, occupational, speech, language and vision therapy at school, and additional therapy at home, Reynolds said.This fall Nick suffered a setback, missing two months of school with a new set of seizures, but he is back in class and getting ready to celebrate his birthday Dec. 14.And while Nick is at school, Reynolds occasionally volunteers at Potentials."I love it. ... Because they helped me so much, that's something I can do to give back," she said. "When you have a busy life, it's not so much to add another thing to the chaotic-ness, especially something like that."

1) How would you think you would feel if you had this disease?
2) What is the author's purpose in writing this article?

19 comments:

Njp1092 said...

I think this a good but sad story. I wish Nick could walk like normal kids. But its great that now he has a vocab of 27 words!! Thats a great improvment.

1. Well im not sure how i would feel if i had this diease. I wouild probably think im the same as everybody else in the inside its jus i cant do things as well as people.

2.The authors purpose of writting this is that to tell a story of this young child who has been diagnoised with a disease and telling his story through the article.

jrb said...

1. If i had this diseas i wouldnt really understand why i have it. I would understand that many people help each day.

2. The authors purpose in writing this article is to tell us how a young boy with some disabilities cano overcome and suceed to have a normal life.

jrb said...

I thouhgt the story was very intersting, and answered some of my questions about kids with diseases and how they work with them.

JME said...

I thought that this was an intruiging article. I felt so sad for Nick and I now know how kids deal better with these types of problems.
1) I would feel horrible to know that I'm not like an average kid but I would feel better to know that I would have as much help as I need to get though the problems I would face.
2) The authors purpose in writing this article was to tell how a disabeled kid named Nick is surrounded by loving people that help him each day.

JMR1 said...

1.I would be very discouraged knowing that I would never be normal.And I would wonder if I would ever be like all the other kids.

2.The authors purpose was to tell the story of a young boy with a very horrible disease .

RSS said...

1. I probably would feel isolated and frusterated. Having a vocabulary of only 27 words and hardly being able to move would be horrible. I would probably not be able to understand why it was happening to me.

2. The Author's purpose was to inform the reader about Nick's disability and how he is overcoming it.

EMG said...

1. If i had this disease I probably wouldn't think anything of it because i would think that i am a normal kid.

2. I think the author wrote this article because it showed how a boy who had a life threatening problem was able to overcome it and live with it.

ABG said...

I think it is so sad to have a disease like that but it is great that Nick is better than in the beginning.
1.I would feel sad and angry and I would wonder why I had the disease.
2. The authors purpose is to tell what a great improvement Nick has made.

nsj said...

1)I think i would feel different or lonely sometimes if i had the disease.
2)I think the authors purpose of writting this was to tell us about a kid named Nick with problems who had a souple miracles happen. Like he was supposed to die at age 1, and his vocabulary kept improving.

VS said...

k1. If I had a disease I wouldn't feel any different becuase I probably would'nt know any better.

2. I think the authors purpose was to tell a story about how kids with disabilties can do things that kids with no disabilities can do.

MCR said...

It is a good story. Nick should be like normal kids.

1. I would not like to have this disees because people would not want to be my friends and they would look at all the time.
2.The authors porpose is to show that not all people are the same but they should be treated the same as everyone esls evening though they are different.

jp11 said...

1. If I had this disease I am not sure how I would feel and think. I would propably think I am like everyone else and I would probably think that there is nothing wrong with me.

2. I think that the author's purpose of this article is to show what this child's life is like having this disease and what he has accomplished

PMP said...

This was a great story but very sad because of the disease the boy had,
1.) I think that I would not let the disease hold me back I would get help. I would do my best and get therapy to become better at all things.
2.) The authors purpose in writing this story is to show that anything is possible if you work hard at it and dont let anything hold you back. Also that no matter your situation in life do your best and be yourself.

cmg0125 said...

This story was extremely good, but it kind of upset me because now I feel bad for this poor kid.

1-I'm not exactly sure how I would feel if I had this disease. Barely being able to see, having some characteristics of autism, an agression dissorder and seizures is a lot to handle. I would probably be fine with it when I am young because I don't know what I have exactly. But, when I am older, I think that I would start to realize all the different disabilities I have and it would make me sad.

2-What I think the authors purpose of writing this story is to teach people that even though you may have several disabilities, if you set your mind to it, you can do it.

MPO said...

1. If I had this disease, I would just appreciate being treated with kindness, like from the people who would just take time to say hi to me, even if I couldn't really talk back. All I know is I wouldn't want to be treated like an insane person that everyone laughs at and are too afraid to just smile at. I think people like that are SO mean and close minded. They don't realize how far a smile can go.

2. The authors purpose of this article was to inform the reader about this child's disease and how he has gotten some great help and has worked so hard to become as normal as he possibly could with the disease he has.

M.M293 said...

1.I would feel ackward because i have a disease and i wouldn't get how i got it or where i got it from

2.The authros purpose is to explain that a child can get the same disease adults can but still live normal

EAS said...

This article was really informational. It's a miracle that Nick could beat the odds, and still enjoy his life.

1.) I think it would be extremely hard to overcome a disorder like this. I honestly do not think I would be as strong as Nick is.

2.) The author's purpose is to inform. He wanted to explain to the reader how much Nick overcame.

HG said...

1)Having this disease would be very hard to live with because you would'nt be able to do what average people take advantage of all the time,such as talking,walking, and seeing.

2)The authors purpose of this story was to show how a young boy overcame a horrible life-threatning disease.

CF101 said...

1.)If I had this disease I dont think I would really feel much of anything because I wouldnt know.
2.) The authors purpose in writing this article is to tell about a boy who has a disease and tell how he lives with it on a daily basis and overcomes it.